As many narrative theorists working on stories about pain and trauma have noted, the narrative form makes it possible to engage with ineffable and hidden experiences through the construction of, for example, strange temporalities and… Read More »The (In)visibility of Pain: Uses and Abuses of Narrative
Regarding the noteworthy changes in the diagnostic procedures of autism and recent discussions of the neurodiversity movement on a global scale, personal narratives on autism have become a part of my interest areas. Despite the… Read More »Understanding Autism Through Autobiographical Narrative of a Third Culture Woman
Click here to join the webinar on Zoom I spent much of 2020 in bed. I think from this position of horizontality about the coronavirus epidemic – and how such a position might reorient questions… Read More »Epidemic Time: Thinking from a Sick Bed
I live with idiopathic emphysema. When I was first diagnosed, my life was about surgeries and hospital visits. But the medical profession lost interest in me once my health had been stabilised (even though my… Read More »Ill, But Invisible: When Doctors Are No Longer Interested
This panel will showcase the work of the 5-year ‘Imagining Technologies for Disability Futures’ research project, based at the Universities of Leeds, Sheffield, Exeter and Dundee. It will explore issues that surround the visibility of… Read More »Technologies and (In)Visibility in Disability Futures
The Obvious Hidden. A paradoxical term, but directly refers to the hidden truth of death. Today, deaths are vividly on display; real-time dashboards, ceaseless breaking news, online charts and bars of death toll rates among… Read More »Multi-layered cadavers; Invisible griefs. Paradoxical logic of mortality during COVID
Contemporary images of healthcare practitioners(1,2,3,4) depict individuals as faceless . Professional codes mandate that practitioners “make the care of the patient your first concern”(5,6) ; being self-effacing. Healthcare, medical humanities and media discourses increasingly generalise… Read More »Re-Facing the De-faced Doctor; Injustice and the Wounded Healer
This paper examines two main themes. Firstly on the macro-level, it investigates the primary conduit in any relationship: communication. Focussing on doctor-patient communication, my paper hopes to shed light on the gaps within the diagnostic… Read More »Communication, Culture and Affect in the Diagnostic Process
While medicine itself often seeks to render visible microscopic or unknown aspects of the human body and the human condition, medical education in the United States depends to a large extent upon invisible elements. From… Read More »Teaching and Reading Vulnerability in Medical Humanities
By means of an introductory performance, three short video presentations, and a panel discussion, we will seek to illuminate the lived experience of chronic illness. The session will draw upon our doctoral studies, creative practice,… Read More »The Sick Researcher: Rendering the Invisible Visible